I thought it would be good to let you know about my fibro journey to gain some insight and knowledge about my history of living with this condition.
I was diagnosed around 3 and a half years ago now. At the time, I had just finished a very stressful job and a time of immense pressure. It was only when everything calmed down that I just knew that something wasn’t right. I’m so glad that I trusted my instincts and went to the doctors back then.
I first started to notice that everything seemed to hurt more. I’d knock into something or hurt myself and the pain just seemed more intense and lingered for much longer than was normal. I would bruise easily, experienced an increase in fatigue and things I once remembered I was now starting to forget more easily. My family thought I was being over sensitive to things but I wanted to go to the doctors to rule out anything more sinister. These symptoms had started to get gradually worse for around 6 months at the time.
The first doctor I went to see (in the February) suggested that I was depressed but I knew that I wasn’t as I still had a willingness to go out and do things and my outlook on life was bright. Mental illness has been close to my family so I have always felt that I’ve been more aware of my own mental state because of it.
After I left the doctors I was not happy with the advice that I’d been given. The doctor did not want to listen to what I had to say and instead told me about depression and I felt like she had forced her opinion on me. I felt like I needed to go back and get a second opinion.
When I went to see the second doctor, he listened to what I had to say and wanted me to have blood tests done first of all. These showed inflammation which meant a referral to the rheumatology team. At this point, I didn’t really know what to expect at all but I was glad that they were being thorough and referring me on to see another doctor.
At my hospital appointment the consultant sat me down (in April) and spoke to me about my symptoms, the severity of them, how long I had been suffering with them and the frequency too. He then sat me on a bed and examined the pressure points on my body. He noted that I was far more sensitive in these areas and it hurt more than it would someone with no medical issues. I felt so relieved that he had spotted this but still had no idea where his diagnosis was going.
The consultant then tested my reflexes, blood circulation and range of movement in my joints too. This took around 20 minutes and he was very thorough which I was glad about. He then told me that he’d like to test some other things in my blood and that he’d refer me back to my doctors.
When my blood results came back along with the letter from the consultant at the hospital I could only get an appointment with the first doctor that I’d previously seen at my GP surgery. The consultant had written that if my blood work was normal they would like to see me back in clinic for further testing but if there were any abnormalities or markers that it was a diagnosis of fibromyalgia and gave some suggested medication too. The doctor offered no help and sent me on my merry way.
I booked in with the second doctor I had seen before who had referred me onto the rheumatology team who spoke to me about fibromyalgia and prescribed me amitriptyline.
This was the start of my fibro journey and things have changed a lot since then. I’ll continue my fibro journey in future blog posts so that you can keep up to date!
How has your fibro journey been?